The Rijswijk Suzanne van Schendel is only 31 years and lies in bed all day. It may sound relaxed for a day of chilling, but it’s different if you can’t get out. Suzanne can’t even sit up straight. She has Ehlers-Danlos Syndrome (EDS), a genetic connective tissue disorder. “For years I was told I had a burnout.”
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Suzanne is very creative, she played the saxophone, made jewelry, joined a drama club and often went to the gym. She also had a full-time job: growing seedlings at the family business and helping others with it. She can’t do all that anymore.
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